Conference abstract
Type 1 diabetes in Guinea - changing diabetes in children
Pan African Medical Journal - Conference Proceedings. 2023:19(12).23
Nov 2023.
doi: 10.11604/pamj-cp.2023.19.12.1915
Archived on: 23 Nov 2023
Contact the corresponding author
Keywords: Type 1 diabetes, children, access, diabetes care, Guinea
Oral presentation
Type 1 diabetes in Guinea - changing diabetes in children
Alpha Mamadou Diallo1,&, Mamadou Chérif Diallo1, Mamadou Mansour Diallo1, Amatoulaye Diallo1, Moustapha Kouyaté2, Joseph Samah Bangoura3, Anne-Sofie Westh Olsen4, Amadou Kaké1, Naby Moussa Baldé1
1Department of Endocrinology, Diabetes, and Metabolic Disease, University Hospital of Donka, Conakry, Guinea, 2Department of Pediatrics, University Hospital of Donka, Conakry, Guinea, 3Novo Nordisk, Changing Diabetes in Children (CDiC), Abidjan, Cote D'Ivoire, 4Novo Nordisk, Changing Diabetes in Children (CDiC), Copenhagen, Denmark
&Corresponding author
Introduction: type 1 diabetes (T1D) in Africa is characterized by misdiagnosis and lack of access to life-saving insulin therapy for those diagnosed. We aimed to assess the burden of T1D and provide an overview of the accessibility and affordability of care for people living with T1D in Guinea since the start of the CDiC partnership in 2009. Methods: we assessed the burden of T1D with data collected from a national registry implemented in 2009. We additionally conducted 2 cross-sectional surveys in November 2021 to assess the accessibility and affordability of diabetes care for T1D. The first survey was conducted on 13 public and 30 private pharmacies throughout Guinea to understand the availability and cost of care and medical supplies. The second survey was conducted by direct interviews with 90 youths rolled out from the CDiC program at age 25, to assess “the real-life” affordability of diabetes care for T1D in Guinea. Results: as of April 30, 2023, a total of 1,243 children have been diagnosed and treated with comprehensive T1D through the CDiC partnership since 2009. On average, children enrolled in CDiC visit a clinic monthly, HbA1c average improved from 10.6% in 2010 to 8.3% in 2014 and mortality dropped from 25% (2010) to 3.8 % (2017). An estimated yearly cost of $ 1525 was found for T1D supplies per individual. Among patients rolled out from the program, the prevalence of poor glycemic control increased from 65% to 78%. Conclusion: the CDiC partnership allowed better access to T1D care in Guinea by providing medical supplies such as insulin, glucometers, strips, and HbA1c testing. Our survey throughout pharmacies in Guinea shows that CDiC saves families an estimated yearly cost of $ 1525 per child with T1D. However, there are still challenges remaining, particularly for the quality of care.
Type 1 diabetes in Guinea - changing diabetes in children
Alpha Mamadou Diallo1,&, Mamadou Chérif Diallo1, Mamadou Mansour Diallo1, Amatoulaye Diallo1, Moustapha Kouyaté2, Joseph Samah Bangoura3, Anne-Sofie Westh Olsen4, Amadou Kaké1, Naby Moussa Baldé1
1Department of Endocrinology, Diabetes, and Metabolic Disease, University Hospital of Donka, Conakry, Guinea, 2Department of Pediatrics, University Hospital of Donka, Conakry, Guinea, 3Novo Nordisk, Changing Diabetes in Children (CDiC), Abidjan, Cote D'Ivoire, 4Novo Nordisk, Changing Diabetes in Children (CDiC), Copenhagen, Denmark
&Corresponding author
Introduction: type 1 diabetes (T1D) in Africa is characterized by misdiagnosis and lack of access to life-saving insulin therapy for those diagnosed. We aimed to assess the burden of T1D and provide an overview of the accessibility and affordability of care for people living with T1D in Guinea since the start of the CDiC partnership in 2009. Methods: we assessed the burden of T1D with data collected from a national registry implemented in 2009. We additionally conducted 2 cross-sectional surveys in November 2021 to assess the accessibility and affordability of diabetes care for T1D. The first survey was conducted on 13 public and 30 private pharmacies throughout Guinea to understand the availability and cost of care and medical supplies. The second survey was conducted by direct interviews with 90 youths rolled out from the CDiC program at age 25, to assess “the real-life” affordability of diabetes care for T1D in Guinea. Results: as of April 30, 2023, a total of 1,243 children have been diagnosed and treated with comprehensive T1D through the CDiC partnership since 2009. On average, children enrolled in CDiC visit a clinic monthly, HbA1c average improved from 10.6% in 2010 to 8.3% in 2014 and mortality dropped from 25% (2010) to 3.8 % (2017). An estimated yearly cost of $ 1525 was found for T1D supplies per individual. Among patients rolled out from the program, the prevalence of poor glycemic control increased from 65% to 78%. Conclusion: the CDiC partnership allowed better access to T1D care in Guinea by providing medical supplies such as insulin, glucometers, strips, and HbA1c testing. Our survey throughout pharmacies in Guinea shows that CDiC saves families an estimated yearly cost of $ 1525 per child with T1D. However, there are still challenges remaining, particularly for the quality of care.
